Okay, so after eleven months, the medical industrial complex has finally wrung MJE dry and kicked me to the curb…my right hooter has been mammogrammed, programmed, pajamagrammed, MRI’d, FYI’d, DIY’d, x-rayed, blue rayed, inspected, bisected, dissected, irrigated, oxygenated and irradiated. Every doc, nurse, orderly, lab tech and passerby in several states has felt it, held it, fracked it, hacked it and packed it. I’ve been cooked to medium-well and am sporting a Boehner tan headlamp with a permanent smirk. Oh, that and a head of holocaust hair.
So, what did MJE learn from this experience? First off and a tad bit late for me, that the kind of cancer with which I was diagnosed is a form that many in the forefront of oncology now believe may be best left alone and monitored closely. No rush to surgery. Treated more like a polyp in your bottom than a bombshell in your bosom. Also that a surgeon never met a piece of meat he didn’t want to carve up and will never admit when he doesn’t know what he doesn’t know. I also realized that many doctors are as resistant to change as the most stagnant civil servants and that a patient needs to do her homework, sharply question a treatment plan, or lack thereof, and to over ride it without feeling guilty about changing docs or getting another opinion. My health and yours are more important than some doc’s inflated ego. I also think that being a tattle-tale is a good thing for the general betterment of the afflicted. I’m not talking about going to the medical board, but if a specialist has been referred by your primary doc and you have valid complaints, you should let the referring doc know before he sends another hapless victim over.
I also discovered that nurses and technicians can literally be your best friends and are entirely under-appreciated in the medical universe. I found that getting their take on what’s really going on is invaluable. They are in the trenches all day every day while most docs pop in when required, having read the notes (or as is sometimes the case not even that) give you a cursory once over and waft out the door without so much as a by your leave. That said, MJE was treated by a couple of exemplary docs who were more than willing to put away their stop watches and take whatever time was necessary, so all is not lost, yet.
Finally MJE was extremely gratified to find that it is actually possible to get your money’s worth out of the godless health insurance companies if you: meet your horrendous deductible, then get some really crappy diagnosis, have months of complications, endless (often unnecessary) tests and a tediously lengthy treatment plan. MJE totally ate BC/BS’s lunch in 2015! Admittedly it was an extremely long and unappetizing meal , but in the end the dessert was delicious. And for once it was on the house.